Zilonda za Ana ... Kwa nthawi yoyamba akumva mawuwa, ambiri nthawi yomweyo amaganiza njenjete zamitundu yosiyanasiyana, akuyenda mosasamala pakati pa maluwa ndi chimwemwe cha ubwana, osadandaula kwambiri ndi nkhawa. Panthawiyi, moyo wa ana omwe ali ndi matenda a gulugufe sungakhale ngati nkhani yamatsenga kapena chithunzi chabwino. M'nkhani ino tidzakambirana za congenital bullous epidermolysis - matenda ovuta omwe amakhudza khungu la thupi la munthu.
Bullous Epidermolysis: Zimayambitsa
Monga lamulo, makolo a anagulugufe amaphunzira za matenda a khungu la mwana wawo masiku oyambirira (ndipo ngakhale maola) mwana atabadwa. Kwa nthawi yoyamba matendawa anafotokozedwa kumapeto kwa zaka za m'ma 1900, mu 1886.
Choyambitsa matendawa ndi chilema cha chibadwa chimene chimalepheretsa epidermal layer kukhala ndi chitetezo. Chilemachi chimachokera kwa makolo omwe ali zonyamulira zawo zobisika, kapena zimachitika pokhapokha. Zotsatira zake, khungu lonse (kuphatikizapo mucous membranes) limakhala locheperachepera - kukhudza pang'ono kungapweteke. Apo ayi, ana oterewa ndi abwinobwino - samangokhalira kumbuyo m'maganizo ndi m'maganizo, amakula bwino komanso ndi thandizo lomwe angakhale gawo lonse la anthu.
Zitsanzo za cholowa cha matendawa sizinawonekere - odwala omwe ali ndi epidermolysis amatha kukhala ndi thanzi labwino komanso odwala. chidziwitso cha matendawa ndikuti mwana asanabadwe n'zosatheka kuti azindikire ndi njira iliyonse yodziŵira zamankhwala - ngakhale ultrasound ya fetus kapena mayeso a labotale amapereka zotsatira.
Nthawi yovuta kwambiri ya ana a butterfly ndi zaka zitatu. M'tsogolomu, pakuthandizidwa ndi kusamalidwa bwino, khungu limakhala laling'ono, limakhazikika, ngakhale kuti silikufikira mphamvu ya khungu la munthu wamba. Kuwonjezera pamenepo, ana aang'ono sangathe kudziwa za machitidwe omwe amachititsa kuti asokoneze ubwenzi wawo, sangathe kufotokozera kuti n'zosatheka, mwachitsanzo, kugwada pa maondo awo, popeza khungu la miyendo lidatha "kuchotsa" kapena kupukuta maso kapena masaya.
Bullous epidermolysis: mankhwala
Tsogolo la ana a butterfly ndi lovuta, chifukwa matenda omwe amawachititsa kuzunzika kochuluka sizowachiritsidwa lero. Zonse zomwe zingachitike kwa ana oterowo ndi kuyesa kuteteza khungu lawo lopweteka kuvulala (lomwe ndilovuta kwambiri), ndipo ngati zichitika zawo ziri bwino komanso nthawi yoyenera kuzisamalira. Koma ngakhale zili choncho, m'mayiko ambiri otukuka omwe amasamalira odwala ndi maphunziro a moyo wonse, zomwe zimawalola kuti azikhala ndi moyo wamba, kulandira maphunziro, kukhala ndi moyo wathanzi komanso kusewera masewera.
Mu CIS, ndi matenda a bullous epidermolysis, matendawa amakhala osasangalatsa, chifukwa matendawa ndi osowa kwambiri, madokotala alibe zochitika zothandizira odwalawo, ndipo nthawi zina samaganiza kuti matendawa alipo. Kawirikawiri makolo amadzipangitsa kuti azikhala ndi vutoli, amadzipangira okha mankhwala komanso amayesa kuwononga khungu la mwanayo, njira zopangira mafuta komanso olankhula, bluehead ndi njira zina za mtundu umenewu. Mosakayikira, mutatha "chithandizo" choterechi, ndalama zowubwezeretsa mwana wamwamuna kuti ziwonjezere kuwonongeka kwa thupi, pamene chisamaliro chokwanira pa nthawi yake ndi chovuta kwambiri, koma chotsika mtengo kwambiri. Ana a butterfly amafunika
Chifukwa cha kusadziŵa bwino zachipatala ndi chikhalidwe cha anthu, kusowa chidziwitso pa chisamaliro ndi chithandizo, ana ambiri okhala ndi bullous epidermolysis amafa ali aang'ono.
Zoona, kusamalira khungu ndi moyo wa ana a butterfly zimasiyana mosiyana kwambiri chifukwa cha kuopsa kwa matendawa - kulemera kwake ndi mawonekedwe, komanso kusamalidwa ndi chithandizo choyenera cha mwanayo.