Mwatsoka, nthawi zambiri galactosemia mwa ana obadwa amangozindikira. Komabe, chikhalidwe cha odwala omwe ali ndi matenda ozindikiritsa chiwerengerochi chikufalikira mofulumira m'masiku oyambirira a moyo wawo. Pa tsiku lachinayi la matenda osadziletsa, ana otere sangathe kumwa. Chikhalidwe chawo chosayanjanitsika, chowonekera kutali, chimachitika chifukwa cha vuto lalikulu la mkati - ali ndi chiwindikiro cha chiwindi, jaundice ikuwonekera, madzi amadzimadzi amasonkhana m'matumbo.
Galactosemia ndi matenda aakulu, sangathe kuchiritsidwa momwe matenda a tizilombo amathandizira, koma n'zotheka kulenga mwana yemwe ali ndi matenda omwe amatchulidwa kuti ali ndi moyo womwewo monga wa anzake ndi anzanu abwino. Pachifukwa ichi, thandizo lokhalo limene mungapereke kwa mwanayo ndi kuphunzira momwe mungatsatire zakudya zapadera zomwe zili zofunika kwa mwanayo.
Zifukwa ndi Zizindikiro za Galactosemia
Galactosemia ndi matenda obadwa nawo (obadwa nawo) omwe amayamba chifukwa cha kuchepa kwa thupi komanso kutengera galactose mu thupi. Chifukwa cha matenda opatsirana mu galactosemia, kusintha kwa galactose kuti shuga ndi kovuta.
Nthawi zambiri ana obadwa kumene ali ndi galactosemia ali ndi thupi lolemera kwambiri - oposa 5 kilogalamu. Atatha kudya, amasanza kwambiri, ndipo nthawi zina amatsekula m'mimba. Mkhalidwe wa odwala umachepa mofulumira chifukwa cha kuchuluka kwa chiwindi, ntchentche, ascites (chikhalidwe chomwe chimadzimadzi chimakwera mumimba mwa m'mimba). Pambuyo pake, zizindikirozo zingaperekedwe ndi chimbudzi cha diso (kapena cataract). Popanda chithandizo, ana obadwa ndi galactosemia akhoza kufa chifukwa cha bacterial sepsis, yomwe nthawi zambiri imayamba ndi matendawa. Komabe, masiku ano, odwala omwe ali ndi zizindikiro zoyambirira za nyenyezi zimathandizidwa nthawi yomweyo ndi ogwira ntchito zachipatala.
Chithandizo cha galactosemia - zakudya zovuta
Maziko a chithandizo cha ana odwala ndi zakudya zopanda mkaka. Kumbukirani kuti ngakhale kuti ana osakaniza lactose amaloledwa kugwiritsa ntchito mkaka wopanda lactose, mankhwala atsopano a mkaka wa lactose saloledwa kwa ana obadwa ndi galactosemia. Kudya kwa mwana, nkofunika kupeŵa kuchepa kwa mkaka ndi zotengera zake, kuphatikizapo kusakaniza mkaka - sangathe kulowetsa thupi la mwana wawo. Zosakaniza zomwe zingagwiritsidwe ntchito pa galactosemia ndi zosakaniza za soya ndi mkaka wa amondi.
Komabe, kumbukirani kuti kukana mkaka monga mkaka, yogurt, kirimu, batala, komanso mankhwala omwe ali ndi zizindikiro za mkaka - izi sizeng'onoting'ono. Kuchokera kuzinthuzi, wodwalayo ali ndi galactosemia ayenera kusiya moyo wake wonse, kupeŵa kuphatikizapo mankhwala monga margarine, mkate, sausages ndi mankhwala omwe amatha, omwe amapezeka kuti mkaka ulipo. Musataye mtima, mungagwiritse ntchito mitundu yambiri ya zinthu: nyama, nsomba, masamba, zipatso, mafuta a masamba, mazira, mbewu zosiyanasiyana.